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Sharing an update on Carson, he is getting stronger everyday πŸ’šπŸ’šπŸ’šπŸ’šπŸ’šπŸ’šπŸ’š Way to go CarsonπŸ’šπŸ’šπŸ’šπŸ’šπŸ’šπŸ’šπŸ’šπŸ’šπŸ’š
#Carsonstrong #KawasakiDiseaseAwareness
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Day 9 with Carson's most precious gift πŸ™‚ Carson has been great !! He is getting stronger everyday . Today Carson has his first Cath where they take a piece of his heart to biopsy for any signs of rejection . Once again Mike and I hand him off to the team of drs and he will be away from us for 2-4 hours . He will need to be intubated again for the procedure , we pray he does well and can be extubated sometime this evening . I'm not sure when we will know the results but I will update as soon as I do . Much love to you all and please pray all goes well for carson and this beautiful heart is doing well in his body . πŸ’šπŸ’šπŸ’šπŸ’š #carsonstrong #hearttransplant #heartwarrior #donatelife #thankyoutoourdonor #kawasakidisease #forevergreatful #thankyougod

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Wishing Carson a speedy recovery!!#Carsonstrong #KDawareness πŸ’šπŸ’šπŸ’šπŸ’š ... See MoreSee Less

Sorry for the delay in my update , we finally fell asleep for a couple hours ! Carson got his new precious heart !!! Surgery went well and he is currently sedated and intubated hopefully for a short while ! We were given the opportunity to be able to see carsons heart and hold it . We made the decision to donate it to #kawasakidisease research in hopes it helps someone , somewhere. The heart was very sick and completely fell apart as they took out of his chest . They had a difficult time getting the Berlin cannula's out of his stomach as it grew new skin around site like it was supposed to , they did a lot of tugging to get them out and healing of these wounds are going to be difficult. Carson was hit with massive doses of steroids in OR and a ATG med to completely destroy his immune system to help with rejection of the new heart . His transplant Dr said these next couple days are extremely critical and they need to really watch him , and for the next year closely monitor for rejection as death is at 10% in first year. So we have a very long road but this was the first step to the rest of his life ! Thank you all so much for the support and prayers today all day every day since this all started. I will continue to update ! Here's us with carson this morning before transplant . And thank you so much to the selfless parents that gave my son a second chance of life by giving him to help ultimate gift anyone could receive. May you rest in peace sweet donor child , I promise we will do something everyday to honor your child . πŸ’šπŸ’šπŸ’šπŸ’š #carsonstrong #donatelife #hearttransplant #thankyougod #thankyoutoourdonor #kawasakidisease #forevergreatful

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2017 Kawasaki Disease Parent Symposium

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Please keep little Carson in your thoughts today as he receives his new heart #carsonstrong #KDAwareness
Sending all our love and thoughts to this brave boy and his amazingly strong momma πŸ’šπŸ’šπŸ’šπŸ’š
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Carson's heart is here !!!! We got to watch them bring my baby's new heart in !! #carsonstrong #yougotthisbigboy #hearttransplant #donatelife

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